National Organizations

National Down Syndrome Society (NDSS)

The mission of the NDSS is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome.

 

National Down Syndrome Congress (NDSC)

The NDSC works to create a national climate in which all people will recognize and embrace the value and dignity of people with Down syndrome.

 

Global Down Syndrome Foundation (GDSF)

GDSF is dedicated to significantly improving the lives for people with Down syndrome through research, medical care, education and advocacy.

 

LuMind Foundation

LuMind’s mission is to stimulate biomedical research that will accelerate the development of treatments to significantly improve cognition, including memory, learning and speech, for individuals with Down syndrome so they can: participate more successfully in school, lead more active and independent lives and avoid the early onset of Alzheimer’s disease.

 

International Mosaic Down Syndrome Association

IMDSA is designed to provide support, information and research to anyone whose life has been affected by mosaic Down syndrome.

 

International Down Syndrome Coalition (IDSC)

The IDSC is dedicated to helping and advocating for individuals with Down syndrome from conception and throughout life.

 

Spread the Word to End the Word

Campaign to raise awareness about the hurtfulness of the r-word.

 

DS-Connect: Down Syndrome Registry

The registry links those seeking volunteers for their research studies with those who most stand to benefit from the research.

 

World Down Syndrome Day

A global awareness day on March 21 to honor and celebrate those with Down syndrome.

 

Social Security Disability Resource Center (SSDRC)

SSDRC informs how the Social Security Disability and SSI Disability process works from start to finish.

 

Wrightslaw

Wrightslaw provides accurate and reliable information about special education law, education law, and advocacy for children with disabilities.